Edinburgh Centre for Research on the Experience of Dementia

We are an interdisciplinary group of dementia researchers, people with dementia, dementia practitioners and representatives from a range of dementia organisations. We are interested in exploring and developing theories, methods and impact around the experience of living with dementia.

 We work across the following core themes:

  • Coproduction and participatory research
  • Creativity and arts-based approaches, interventions and methods
  • Social relationships and friendships, peer support, emotions and counselling
  • Living and dying with dementia
  • Dementia and design
  • Marginalised groups with dementia (including people with intellectual disabilities)
  • Working with people who have dementia to understand their experience and possible approaches to impact policy, practice and society

Our aim for the Edinburgh Centre for Research on the Experience of Dementia (ECRED) is to create international social research and impact that prioritises the experience of dementia and strengthens global understanding of living with dementia. We provide a research and learning environment that creates opportunities for the sharing of knowledge and skills focusing on improving the lived experience of dementia. The perspective of the person with dementia is central to this work. We have a strong and active commitment to interdisciplinary working and many of our current projects include collaborations with researchers, clinicians and practitioners in a range of practice settings, with voluntary sector organisations and with other academics throughout the UK and internationally as well as across disciplines of social work, counselling, the arts, nursing, psychology, philosophy, geography, and social policy.

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Our Projects:

A Public Inconvenience bold (Bringing out Leaders in Dementia)
Counselling People with Dementia CREATE Dance for Dementia
Nigeria-Scotland Arts Exchange Showing the Way
Stories of Empowerment The ECREDibles
The ‘New Dementia’ The Smarties
Thistledown Project  

Our people from academic staff to PhD students, centre partners and knowledge exchange fellows.